IMAGINE
never being able to hold your child tight because, if you did, their skin
would blister or come off.
IMAGINE the pain of an infant waking every morning, covered in
blisters. Imagine, as a parent, having to lance each blister while your
child shrieks with pain.
THIS is life for the hundreds of `Butterfly Children' who suffer
from the genetic skin condition called, Epidermolysis Bullosa, (EB). Their
fragile skin can blister and rupture at the slightest friction, leading to
severe disfigurement and disability. An estimated 5,000 people in Great
Britain have some form of the disease. In its most severe forms, EB is
fatal.
But there
is hope! DEBRA is a charity making a difference. It not only provides
specialist health care for EB sufferers, but its professional research
unit is determined to find a cure. Please help us end the pain and horror
of EB as quickly as possible!
For more information on how you can help DEBRA, see our web site at: http://www.debra.org.uk/
Dystrophic Epidermolysis Bullosa Research Association
Registered
Charity No: 284754
DEBRA
DEBRA House
Wellington Business Park, Dukes Ride,
Crowthorne, Berkshire RG45 6LS
Tel: 01344 771961
Fax: 01344 762661
